Thalassemia is one of the most common hereditary and chronic diseases in the world, and in parents with a child with this disease the ability to return to normal quality of life and adaptation to disease is very important. The aim of this study was to determine the relation between resilience and quality of life in the parents of children with thalassemia major.
Materials and Methods: This is a descriptive-correlational study that was performed on 165 parents of children with thalassemia major in Zahedan in 2016 who had inclusion criteria. The data collection tool was a demographic data form, a Conner-Davidson resiliency questionnaire, and a SF-36 quality of life questionnaire. Data were collected by SPSS software version 22 and analyzed by descriptive statistics, Pearson correlation coefficient and multivariate linear regression with significance level of 0.05.
Findings: There was a significant direct correlation between the increase in quality of life and resilience (p <0.001). Also, there is a significant relationship between resiliency with parental education and the gender of children (p = 0.02, p = 0.007). There is a significant direct correlation between quality of life and parent education (p <0.001).
Conclusion: Due to the low relative quality of life in the parents of children with thalassemia major, training and follow-up of health care services should be provided by the medical staff to improve their quality of life and their children. Also, considering the relationship between quality of life and quality of life and the level of education of parents, fundamental and structural measures should be taken to improve the academic literacy of the parents of people with thalassemia.

 

Keywords: Resilience, Quality of Life, Parents, Thalassemia Major

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